Making Changes at Mid Life

The takeaway–the life lesson– is that our lives aren’t over until God says they’re over.

Finding our right work–vocation–livelihood is like trying all the keys on a chain to see which one unlocks the door to true happiness.

Readers: I failed big time at a lot of things. I spent five years in the gray flannel insurance field just starting out–that’s my number-one infamous claim to having failed.

Getting to mid life gives us the chance to reexamine our path. It’s not ever too late to take action in the direction of our dreams–or in the direction of a new passion that arrives later in life.

I went to graduate school with a woman in her sixties–yes, she was going to school at 65!

I say: risk change–believe in tomorrow. I will talk soon about how one daring act when I was 46 totally turned my recover around for the better.

It’s not ever too late to make a positive change and see results.

Fifty and beyond is prime time.

I’ll tell readers now and always: set your sights higher. As best you can, refrain from believing anyone who tells you there’s no hope that your illness can get better.

Our lives can change for the better at any point along the way.

In the next blog entry I’ll tell you how I’m confident beyond a doubt that this is possible. I’ll talk about how other people have made this happen.

Schizophrenia Recovery at Mid Life

I turned 50 last year. It’s a time that’s so challenging for a lot of us–yet it helps to see our lives in a cheer-view mirror not a rear-view mirror.

It’s a life lesson to realize that as I wrote here and elsewhere we should give ourselves a “life line” for making our goals real instead of an impossible must-do-it-by deadline.

Face it: at 50 a lot of us mourn unrealized dreams. We should be embracing the future and living in the here and now instead. Always an alternative exists that is just as good as the original goal.

I had wanted to get a diploma in image consulting from FIT. This dream disappeared quickly along with my idea to take up running that could’ve been stamped DOA–dead on arrival too.

Whatever happens, we’re not always going to achieve a goal we set. We can end it with grace and move forward with the courage and resilience to choose a new goal.

This is because our lives aren’t over at 50. It’s a myth that EVERYONE diagnosed with schizophrenia dies 25 years earlier. A MYTH. My friend is 72 and has taken SZ meds since he was 13. I kid you not–he’s 72.

The life lesson I give readers is to not give up on yourself or settle for the path of least resistance.

There’s still time to make positive changes and see the benefits of improving your life no matter where you are in your recovery or how far you think you still have to go.

I say: act with grace and kindness towards yourself and others. There’s still far too much ongoing hate and violence in the world. We shouldn’t be giving critics and haters the power to influence how we feel about ourselves.

In the coming blog entries I will continue to talk about recovery at mid life.

 

Non-Traditional Work

I have famously celebrated Rite Aid cashiers in this blog and elsewhere.

An old SZ magazine news article of years ago talked about what to do if you have negative symptoms or other limitations that make paid employment not viable.

The analogy was that if you like to play guitar you could join a band. If you like to write you can try to get published in literary journals. And so on. And so on.

I have often made the case that only valuing work that contributes to the economic stream in society effectively undervalues people whose humanitarian work–and often the work of recovery–DOES COUNT as a worthy endeavor.

One of my saddest things is that parents with adult kids who are diagnosed with schizophrenia often have to mourn the loss of the son or daughter who isn’t going to be the M.D. or J.D. they hoped.

My contention is: it’s not our parents’ choice that should determine what we do in life.

I’ve been told of a woman who bakes cakes. I’d be willing to take the risk to pay her $100 to bake me cakes to take to a holiday party. Her father is disappointed that all she does is bake cakes. The identities in this story have been changed yet you get the idea.

I don’t value paid employment because I’ve worked with rude or lazy co-workers so I can assure you a robot could do their job better. It’s unfair yet they remain employed. I don’t hold these people up as role models. Ordinary people diagnosed with schizophrenia who get up every day and struggle to get out of bed are my true heroes.

I value the gifts people were given at birth to use to better ourselves and others in the world. Using the gifts we were given and not squandering them is indeed the foolproof way to have a full and robust life–regardless of whether you’re paid to do the work you do.

This is where I’m going to end this series of career blog entries. It seems I’ve detailed this as specifically as I can right now.

Stay tuned for topics in April related to finding joy in living in recovery at mid life.

Goal Setting in Recovery

I make the case for setting goals. Instead of allowing yourself to be blown in any direction like a weather vane. Setting and reaching towards goals if you ask me is one way to have joy and contentment in life.

It’s possible that a person can be truly happy watching TV all day every day for the rest of their lives. I’m not that person. I’m not going to judge a person who watches TV all day. I’m not going to judge a consumer who is insecure about their abilities in relation to people they think are superstars who have it easy.

This is my point exactly: life isn’t easy. Life can be hard at times. Life is hard for everyone even if they don’t let it show. Taking control by setting goals to work toward gives our lives a purpose and a power greater than our pain.

If you ask me there’s a benefit in “picking the brains” of successful people to see how they did it so that maybe we can learn from them and create our own success in our own way.

The point is that we don’t have to copy that person exactly. We can take ideas and translate them into our own mode.

One example is that I tear out fashion advertisements from magazines and insert them in a fashion binder. I won’t be able to replicate the exact look yet when I go in my closet I can create a similar look or mood with clothes I already own.

In this way too we can fashion a lifestyle that works for us. The Aveeno skincare advertisement tells us: “The best way to predict the future is to create it.”

This is what I’m saying: we can create a better life for ourselves when we take action every day in the direction of our dreams. That’s goal-setting in its simplest form. It can start by writing down a To-Do List–the simplest form of setting a one-day goal.

I wrote about goal setting at HealthCentral years ago. I’m no longer the HealthGuide there so I won’t link to those news articles. I will continue in here to pick up where I left off there.

Tennis champ Serena Williams I’ll quote here again:

“You have to believe in yourself when no one else does. That makes you a winner right there.”

Like I said it’s possible to start out with the mindset that you can achieve a goal instead of talking yourself out of doing something.

I believe it’s possible to have a full and robust life. I believe that people diagnosed with schizophrenia bipolar and other mental illnesses have the potential to create a better life for ourselves.

I’ll end here by saying that tearing pictures out of magazines is a great way to begin. If you want to move into your own apartment post where you can see it every day a photo of an apartment from an interior design magazine.

Creating a vision board is another way to visualize your goals. I’ll talk about this next.

 

Getting Mentally Strong

I see things differently.

As the prelude to talking about careers I want to limn the number-one secret to success in recovery and in life: getting mentally strong and engaging in goal-seeking behavior.

I wanted to talk about this after listening to the end of an interview with Amy Morin, LCSW on the radio. She said that mentally strong people refrain from talking about what they can’t do.

The interviewer asked her if this stigmatizes people with mental illnesses. The therapist said “No” because everyone living on earth has potential. Morin referenced Marla Runyan, the legally-blind athlete who competed in and won races in track and field. From Wikipedia:

“Marla Runyan…is a three-time national champion in the women’s 5000 metres.”

Do you really want to compare yourself to other people? Being jealous of other people is not the way to live our lives. We shouldn’t compare ourselves to ordinary, average people because to do that would be lowering our expectation of ourselves to conform to people who aren’t driven to excel.

Think about it: we’re capable on our own of doing great things and setting the world on fire. You and I have it going on in our own way. Other people who are content not to strive to have a better life shouldn’t be our benchmark.

No one else holds us back: only ourselves. I make the case for setting our sights higher and dreaming bigger and setting challenging goals.

To this end in here I’m going to talk about setting goals in the next blog entry.

My secret is simple. Instead of telling myself “That’s impossible!” or “I won’t be able to do that!” my first automatic response is “How can I make this happen if I really want it?”

I urge readers to take up this question: “How can I make this happen?”

Imagine: a woman who was blind competed and won in track and field.

Psychiatrist Questions

Here now I’ll list the questions you can ask your psychiatrist either when you’re first diagnosed or at any point in your recovery.

Psychiatrist Questions

If I need to call you, how long do you usually take to respond? Do you have another doctor on-call if you’re on vacation?

If I ask you questions, will you give me detailed information about why you think I need a certain treatment? I need to know the rationale behind your suggestions.

What drugs do you frequently prescribe to your patients? Have you had success with these drugs?

How much experience have you had with atypicals?

Will you prescribe drugs “off-label” if you think it will benefit me?

Will you discuss any side effects of the medication you’re treating me with, and do you have a plan in case I develop a side effect?

Is your focus on mental illness treatment and recovery, or do you have a general clientele? Are you willing to be creative in custom-tailoring solutions to my treatment needs?

If my parents or a third-party person needed to speak on my behalf or talk to you about my treatment, how would you handle that?

What would a typical session with you be like?

Do you have an area of expertise with certain illnesses?

Where did you get your degree? Are you Board Certified? How long have you been in practice?

What do you feel challenges and inspires you as a doctor? [This could tell you a lot about their personal work ethic.]

What hospitals do you have admitting privileges with?

Are you willing to coordinate my treatment with my primary care doctor or get the results of blood work or tests from this doctor to integrate my whole health care outlook?

Do you have evening or morning or weekend hours?

Do you test for tardive dyskinesia? Have you ever had a patient who developed this, and what has been your experience with treating TD?

Do you take my insurance? Will you bill my insurance company or do you expect me to pay up front and then submit my own claim form for reimbursement?

What is my diagnosis and how did you come to that conclusion?

What medication do you propose to use? (Ask for the name and dosage level.)

What is the biological effect of this medication, and what do you expect it to accomplish?

What are the risks associated with this medication?

How soon will we be able to tell if the medication is effective, and how will we know?

Are there other medications that might be appropriate? If so, why do you prefer the one you have chosen?

What are the side effects of the medication? How long should I “wait out” any side effects before calling you?

Are there other medications or food that I should avoid while taking this medication?

How long do you expect me to be on this medication?

How often will I be seeing you until the medication takes effect?

If I’m taking more than one drug, when and how often should I take each one?

How do you monitor medications, and what symptoms indicate that the dosage should be raised, lowered or changed?

Are you currently treating other patients with this illness?

What are the best times and what are the most dependable ways for getting in touch with you?

What do you consider an emergency if I have to call you after hours?

Do you believe someone can recover from a mental illness?

[This question is the gold standard. If at all you get the idea that this doctor doesn’t believe recovery is possible it will benefit you to keep looking until you find a professional who is interested in seeing his or her patients succeed in life.]

Fight Like a Girl–or Guy

In her article the woman said she was upset that others talk about fighting their disability. She claimed the disability was part of who she was and that she fought discrimination instead.

This illustrates that for too long we’ve has to fight for our rights: for the rights other people take for granted that they have.

Normal people think nothing of having a home of their own and working at a job they love. Yet when you have a diagnosis you often have to fight to be taken seriously in your goal of living independently and having a career you love.

I’m willing to stand up for my rights and other people’s rights to live a life of dignity where we’re accorded kindness and compassion.

I say this because for too long our focus was misplaced. We often spend the earliest years of our recovery fighting the diagnosis and giving it power over us. Yet what you resist persists.

The moral of this story is: fight like a girl–or a guy. Stand tall. Walk proud.

In this regard: The Helping Families in Mental Health Crisis Act in the House of Representatives was marked up and kept intact with every provision. Call or e-mail your congressperson to urge him or her to vote yes on making this bill the law.

A contingent of Democrats tried to water-down this bill so that in effect it wouldn’t help those of us with a chronic form of schizophrenia who need evidence-based treatment. Shame on you, whoever those Democrats were.

The Act has bipartisan support. Fighting for the right of individuals diagnosed with schizophrenia to get effective treatment is one way to fight.

Right now I’m fighting against having to do the work of 10 guys in my Toms shoes to paraphrase the lyrics to a J. Lo song about her YSL stilettos.

My point is: nothing is going to change unless more of us have the courage to speak out against the crap: the crap that management covers up on the job; the crap we’re given in how others treat us; and the crap in terms of mental health treatment.

Gild it in gold: make it gold-plated on the outside: crap is still crap.

Demanding Excellence

I’m sending this blog entry through one day early because I will be going to sell copies of Left of the Dial soon.

This is where I differ: my stance is that we should demand excellence: from ourselves, from our treatment providers, and from others in society in how they treat us.

Each of us has the choice: the free will to decide what we want to do and how we want to live.

I make the case though for striving to bring your A Game to the challenges you face.

We don’t have to do well everything we do. Yet doing well what’s important and what we value doing well can boost our confidence.

It’s not always easy to feel good when we’ve made a mistake or not performed well. Yet learning from a mistake and giving ourselves a pat on the back for trying is what will give us the confidence to try again.

My contention is: for too long people with disabilities were discouraged from setting goals and achieving them like other people in society do routinely. Other people take for granted going to school to get a degree and having a job and living in their own homes.

Now is the time for individuals living with chronic conditions to act like we’re hot shit. Demanding excellence signals to other people that we won’t accept being kicked to the gutter while others enter the banquet hall and feast at the table.

It’s a choice. I realize a lot of people are perfectly content to have an ordinary average life.

I’m simply giving out another possible option: setting our sights higher for what we can do and how we expect others to treat us.

I’m all for demanding excellence.

Risking Change

I talked in the Left of the Dial blog–or was it here–about having a sustainable life.

Eating everything in sight–the see food–diet wasn’t sustainable for me. Buttoning up my individuality by working in office jobs at insurance firms wasn’t sustainable.

It takes courage to admit failure and take off in a new direction. A person can live in denial only so long before the lid pops off and we’re forced to confront things.

Denial is a coping mechanism we use when the truth is too painful to deal with. Yet make no mistake: we’re aware of the truth about what’s going on. We just keep stuffing it down. Then one day the lid pops off.

I met Lori Schiller at a book talk she gave at the Learning Annex circa 1994 when her schizophrenia memoir The Quiet Room was first published. Lori was the first person who told the audience that we can’t keep stuffing things down.

Stuffing things down causes ill health. I’m convinced it can cause illness.

I’m merely taking what Lori said and running with it because it’s so true.

We need to have the courage to risk doing something new. We need to have the courage to back up and take another route when the road we’re on is a dead end.

In the end and at the end of the day living true to ourselves is the only via option for having a full and robust life.

I might be the oddball in this regard because I choose to see the humor in life. I know that working at a buttoned-up job turned out to be a mistake. It’s better to figure this out later than not ever.

IMHO a job shouldn’t make you ill. And if you have schizophrenia, you shouldn’t be shunted into a job with narrowly defined duties and no chance of breaking out of that blind responsibility.

That’s precisely why I prefer working in a creative field: I like the customers and treat them with dignity. The library is a third place in the community that opens its doors to everyone.

Once a guy came up and I asked: “How can I help you?” “I need a psychiatrist,” he deadpanned. “Do you want a natural treatment or medication?” I followed along.

“I’ll have what  you’re having,” he continued the joke. And he was joking because in no way did he come to me for help finding a shrink. After this quirky banter he did tell me what he was there for.

A numbers cruncher I’m not. And I still can’t do long division. I got a 66 in my trigonometry Regents so I barely squeaked by. How you could rightly ask could someone like me think working in business was the ticket out for her? Wearing suits and having a steel demeanor. With no opportunity to joke around or banter with customers.

It took me seven years to figure out that the road I was on was a dead-end.

The moral of this story is that risking change is better than continuing to be in denial that you’ve gone down the wrong path. It’s better to risk change later in life than not to risk change at all.

With nutrition, with fitness, with a career: it’s better later than not ever to make positive changes.

Gnocchi Recipe

Readers: I failed. At the gnocchi recipe. It was a total disaster.

I burned the inside bottom of the saucepan and had to throw out the saucepan.

It was a recipe I found in the Audrey at Home cookbook written by Luca Dotti–Audrey Hepburn’s younger son.

This experiment convinced me to not want to try to make the gnocchi again. Not at all. The food I’ve cooked from recipes comes out great. Not so with the gnocchi. It was a total disaster.

Wind-up:

I’m tearing through a KMart stocking up on items to the tune of $55. I bought a turquoise baking dish along with the replacement saucepan and other sundries.

You can get household items at KMart on the cheap. Though I didn’t relish having to spend the big bucks to buy another saucepan.

This gnocchi failure seems like the perfect metaphor for recovery and for life:

If at first you don’t succeed, consider Plan B. Figure out your next move when continuing down the same path isn’t an option.

A person is often forced to reinvent themselves when Plan A doesn’t go as planned.

This requires having a sense of humor. Laughter can be the best medicine as an adjunct to SZ medication. I want to tell amusing stories more so than to focus on the hell.

Now not all of our foiled efforts are as laughably raucous as a gnocchi recipe.

Yet IMHO the lesson here is that sometimes a mistake is just a mistake. The option we choose at the time (like going into a gray flannel career when you’re a creative madwoman) seems like the right one.

It’s only in retrospect that we realize: “What was I thinking?” It starts out innocuous. It seems like a good idea. Like wanting to try out a gnocchi recipe. Then you’re full-tilt into a mistake.

Recognizing the need to change direction in our lives is necessary.

That’s the moral of the gnocchi story.

I’ll talk about this in the coming blog entries: taking risks and risking change.