15-Year Advocate Anniversary

This year I’ve been a mental health advocate for 15 years.

In this time it feels like I’ve been preaching mostly to the choir.

I’ve been attacked when I claim that most people can recover.

This fall I’ll have been in recovery for 30 years. In the summer I’ll have been in remission–that is symptom-free–for 25 years.

I’ll be 52 in two weeks. I’ve taken some kind of pills for these 30 years. Today I take Geodon which has been a miracle drug. Before that I took Stelazine for the first 20 years. Neither drug caused weight gain.

I credit that fact that I recovered to my mother’s one courageous act to drive me to the hospital within 24 hours of my break. Luckily, I was admitted and given medication. Three weeks later when I was released the symptoms were gone.

In the time I’ve been an advocate since 2002 there has been some progress–thought most of us would think the progress has been limited.

Wherever I go when I give a talk it’s an honor and a privilege to connect with peers and family members who share common struggles.

I’ve been in the vanguard in terms of what I’ve written and spoken about recovery. No one else has quite yet reiterated what I’ve championed.

I credit having made fitness my number-one priority as having made all the difference in the last six years of my life.

On the cusp of 52 I believe fitness must rightly encompass body, mind, spirit, finances, relationships, and some kind of career–even if it’s just working on your recovery and not a paid job.

For years now I’ve hailed the work of the cheerful cashiers in Rite Aid. Unlike most people, I don’t care about status and I don’t think we should judge a person by whether they’ve achieved traditional markers of success.

Not everyone can and should aspire to become a J.D. or a famous writer. The peer support guideline tells us: “We expect a better tomorrow in a realistic way.”

I’ve learned in the last 15 years from some kinds of failure that expecting a better tomorrow in a realistic way is indeed the way to go.

Lynn Tesoro is quoted at the end of the Bobbi Brown book Living Beauty. I’ll end here with what she said. Tesoro doesn’t waste time focusing on what’s not achievable.

That wisdom if you ask me is the secret to success in recovery as well as life.

It’s far better to focus on what you can do and be and have.

Choosing Goals

It’s clear to me that you and I won’t succeed if we succumb to thinking we have to do what other people tell us is the only right thing to do.

It’s 2017 and we have more and better options for living in recovery.

You’re only going to make yourself miserable and have ill health pretending to be someone you’re not just so you can please other people.

We should not be puppets–either of our government or of anyone else who attempts to pull the strings to get us to conform to a so-called norm.

We will only succeed if we are invested in the goals we set and have the starring role in deciding what we want to do with our lives.

When a person says another person has a ton of self-determination that really means that this individual had the courage to go after getting what they wanted without being deterred by whatever obstacle they faced.

Self-determination sounds like a fancy word however as I define it it’s simply the right of everyone living on earth to determine how they want to live their life and the direction they want to go in in their life.

No other person should be telling us what to do without soliciting our feedback on this course of action. Any treatment plan needs to be created with our input.

Choosing our goals should be up to us first of all. Yet really we shouldn’t set the bar so high that we can only fail. The dilemma is that historically for people diagnosed with mental health conditions the bar wasn’t set at all. We weren’t expected to be able to do much of anything.

2017 is here. It’s time to challenge this status quo. It’s time to speak out on the things that matter to us.

I say: engaging in goal-seeking behavior can make all the difference in a person’s recovery.

Choose your goals with care and attention. Choose goals that make sense to you.

Discarding Goals

I firmly believe that everyone living on earth has the potential to do some kind of work.

For one person this might simply be doing volunteer work or working on their recovery. For another person yes this could be getting a JD.

We are not to frown on those of us who are less fortunate than we are in this regard.

In two months I’ll be 52 years old–and the older I get it’s become imperative to prioritize what I want to do. You too will turn 52 hopefully at some point if you haven’t gotten here now. Prioritizing goals at mid life is the way to go.

In keeping with setting priorities each of us should know that it’s okay to discard a goal or goals that don’t have the chance to be achieved.

At 52 life is getting shorter thus the requirement of choosing wisely what we focus on.

At 52 I’ve discarded a number of goals that used to burn brightly in my mind as things I really really wanted to do in my fifties.

You like I did will plan at 40 what you want to do in the future. Yet the view is different 12 years later at 52. Thus the beauty of discarding goals that weren’t meant to be.

This doesn’t mean you’ve failed just because you’ve quit wanting to do something. You can only fail at something you’ve actually done that didn’t turn out right. You can’t have failed if what you wanted to do you didn’t try to do to begin with.

Bingo–that’s the difference in succeeding at goal-setting–especially at mid life. When we give up focusing on one thing we can replace it with another thing.

Recovery is the gift of a lifetime that we give ourselves in which to heal and be whole and well and happy.

We cannot rush or cut corners when it comes to achieving our life goals. Better to have entertained a goal or two and not acted on it than to sit home throwing ourselves a pity party and not even trying to set a goal because we think we can’t.

Banish the word “can’t” from your vocabulary I tell you. Replace it with “I’m willing to try to see if I can do this.” That’s more like it even if not everything we try will always work out.

I want to continue to talk about setting goals. What I’ve written here is the short version. A book years ago was published that talked about the benefit of quitting.

The difference is: quit when it’s not to your advantage to continue. Persist when the goal is so life-changing that to not risk trying to achieve it would fill you with regret at “what might have been.”

The quote is: “It’s never too late to be what you might have been.”

The view from the cusp of 52 is grand.

Yes You Can

I’ve changed the quote at the top right of this blog.

Years ago circa 1989 when I was shunted into the day program a woman I met told me: “Not a lot of people with a disability could do what you do.”

It’s true that I took offense at this because I thought it was possible to do these things.

As of today the proof that Yes You Can really is that we are “individuals” living with a mental health challenge. Not “consumers” or “schizophrenics” or any other label.

Each of us has the potential to do the things that give us joy and happiness. Each of us has the potential to heal and have optimal mental health. Each of us has the potential to flourish doing what we love.

Harboring jealousy at other people isn’t the way to live our lives.

Today in 2017 I can adamantly rebut that woman’s decades-ago comment with this:

You don’t have to become an Ivy League lawyer or a famous writer to get on with  a happy, healthy, and fulfilling life after you receive your diagnosis.

That’s the distinction I’ve always made in the various incarnations of my blog:

Often our internal roadblocks limit us more than external factors.

The goal I dare say is to be happy and healthy–that’s the true aim of living in recovery.

Each of us gets to define what happy and healthy looks like for us in our own lives.

Again it goes back to what I’ve written about self-stigma. If you’re trashing yourself or someone else because they’re a cashier in Rite Aid, that’s NOT right.

The woman who commented to me that way in the mists of time was an exceptional baker. She could cook like you wouldn’t believe.

So if you are a creative chef creating culinary wonders that’s your version of happy and healthy.

I thought about this woman’s comment today because I was talking with my literary agent who’s as visionary as I am in championing mental health.

Years ago when I first started blogging I had the audacity to claim that most people could recover and go on to have your own version of a full and robust life.

Frankly I’m tired of so-called experts claiming that no one can recover. I’m tired of getting attacked because I choose to focus on on the positive instead of dwelling on symptoms and lack and deficits.

The point is: if you can bake a souffle you’ve got that over me.

Any questions?

Self-Advocacy

You shouldn’t ever apologize for your existence.

You shouldn’t feel that your diagnosis limits you forever.

I coached a guy who found out one of his top forty careers might be a race car technician.

I’m going to be excoriated for telling readers that we can’t always listen to what so-called experts advise us is the right thing to do.

They haven’t met us and aren’t living our lives. Only you and I know what’s the right thing to do on any given day.

You’re an equal partner with your treatment provider(s). You deserve and have the right to have input into the decisions being made about your life.

Today circa 2017 we have more options and better options for what we can do in recovery. If no option exists, you can create an option for yourself.

The Aveeno skincare advertisement gets it right: “The best way to predict the future is to create it.”

Each of us can create a life of our own design.

It’s our right to be self-advocates. You aren’t any longer relegated to being a passive recipient of services.

That’s why I always detested using the word consumer to describe a person. You consume soft drinks. You don’t consume healthcare.

I’m going to end here with this:

You diagnosis doesn’t limit your choices forever.

Yes you can.

 

Continuing in Recovery

The older you get in your life it’s possible to have a better recovery.

My point exactly is that engaging in goal-seeking behavior can make all the difference in the quality of your life.

God didn’t put me here on earth in this lifetime to judge anyone else. Yet it’s my philosophy that watching TV all day and isolating in your apartment can breed ill health.

The term “actively alone” I’ve coined to describe the benefit of doing positive healthy things–whether in your apartment cooking a meal or going to a coffeehouse to read a newspaper and drink a latte.

Sometimes all it takes is getting out of your house and your head to improve how you feel about yourself.

The further along you are in your recovery you can make new strides along the way. The goal is to not stop growing and improving. If you ask me staying in the same place mentally will lead to a stagnant life.

It’s January–which in my book is the perfect time to do early Spring Cleaning.

The first article I ever got published was in 1990 in the Women’s Forum of the Staten Island Advance newspaper. My article in appeared in January and was titled Time to Start Spring Cleaning.

Indeed–over and over through the years I’ve made the case in the blog for doing spring cleaning in January, in the actual spring,or at any time of the year.

Clearing the cobwebs out of your head as well as clearing items out of your closets is to me the perfect technique to segue into taking new risks.

Go at your own pace. Recovery is not a race nor is it a competition.

My friend and I count down the weeks to spring not the endless winter days. Right now there’s just over only nine weeks to spring.

Spring will be here in due season.

Using Lifelines Instead of Deadlines

I coined the term lifeline to describe the time frame one should use when setting goals.

Too often wanting or expecting to do something quickly leads to failure and thus feelings of low self-worth.

That’s a crummy way to keep living your life over and over: trying to hew to impossibly strict deadlines that even an Adidas champion couldn’t live up to.

For all of us it’s possible that faith and doubt battle it out in our minds. Which one will win today? Which one will win tomorrow?

It’s natural to doubt that you’ll ever be able to achieve the goals you set. Then when you don’t achieve a goal it’s a crushing defeat.

Use your doubt as the catalyst for envisioning what is possible. Think of the times where you doubted something in the past and it worked out just fine.

Instead each of us can set a lifeline in which to accomplish what we set out to. I’m not a big fan of five-year plans insofar as most of them take longer and that’s okay.

Isn’t it beautiful to know that we can be victorious down the road–not just today or tomorrow or a year from now?–we can be victorious five or ten or fifteen years from now.

That’s the beauty of having a lifeline to measure our ability to achieve a goal: we don’t have to give up just because the end isn’t in sight.

Oftentimes we need to come at our goal differently or change our goal when the original goal is no longer achievable.

Instead of throwing in the towel and extrapolating that “I’ll never be able to do anything I want”–we can frame it differently–“I can’t do this and have this thing yet if I research what I can do and have I can take different steps to get that.”

Faith and doubt are well-suited to be lifetime boxing partners.

I say: acknowledge the doubt and use it as a springboard. Be grateful when you’re able to have faith. Doubt shouldn’t be feared.

In the next blog entry I’ll talk more about the different types of goals.

Telling Our Stories

At the educational conference I was the first person to talk at the session on: The Impact of SSI and SSDI on Going to Work.

My co-presenter detailed how to apply for these benefits and how to use the Ticket to Work and PASS Plan options to find a job so you can stop collecting SSI and SSDI.

At the start of my talk I quoted lines from the Anne Sexton poem “For John, Who Begs Me Not to Enquire Further.”

She is a famous poet who had her own mental health challenges and is no longer here. Sadly, like a lot of gifted artists, she took her own life.

Yet the lines from her poem are often quoted. She tells the reader that she has nothing else to give and that what she has to give can be hopeful in its own way.

After I quoted the lines I told the audience: “This is my story. It’s the only story I have to tell. It’s unusual and a little atypical. I tell it to uplift and inspire others.”

I’m here to say that what you feel can be healed. Pain can end. I’m a firm believer in using our pain as the catalyst for self-growth and finding out what our life’s purpose is.

I stand by the motto: “service above self.”

It’s true that you get what you give–plain and simple–you get what you give.

Other forums exist in which to spread hate of psychiatry, hate of people who are different from you, and any other kind of hate.

This blog will always be not just a hate-free zone it will be a healthy zone.

It comes down to this: my ethic is: “This is my story–it’s on the table. You can take it or you can leave it.”

In the next blog entry I’ll talk about the new dynamic of holding a job circa 2016.

Risking Failure to Succeed

A little-known fact:

I was on the debate team in high school. I had to write a speech and memorize and present it as part of a team of students who traveled on Saturdays to other schools to compete.

Yes, I gave the speech from memory without looking at notes.

The students were ranked from 1 to 5–5 people the lowest–and the students with the most #1s took home the trophy.

I wasn’t an honors student at the time–I was in the regular classes. Yet I had gotten the ideas when I was a freshman in high school that public speaking was an important skill to have.

Readers, I routinely scored at a 4 or 5. That’s how I know that you can succeed at something even though you failed big time in the past.

As a junior in high school I got a job as a cashier in a supermarket using an old-fashioned cash register. I was fired five days later because I wasn’t any good at it. In college I had the chutzpah to apply for a job as a cashier in a supermarket again.

This time I succeeded.

I write about this because failure is often the cost of doing business in the real world. I write about this because it’s a reminder that for a lot of us success won’t come easy.

Giving up isn’t the answer. Seeing how we can do things differently or do different things so that we can succeed can be a better option.

The solution is to keep risking trying to do things.

Right now I’m writing fiction–my first novel. I have no idea whether it’s any good yet I want to perfect it so that I can start to publish fiction too.

I write about failure because often just starting out in recovery it isn’t going to be easy taking the risks to do the things you want to do.

Most of all, I wanted to be a cheerleader because I didn’t have a lot of cheerleaders when I was involved in the community mental health system.

There’s no shame in wanting to have a better life. There’s no shame in wanting to do better for yourself.

I cannot and will not be complicit in reinforcing that people with mental health conditions are helpless and that our future is hopeless.

So I dare readers: set a goal. Take a risk.

Believe in tomorrow because the future can be better.

Embracing Failure to Grow as a Person

The quote on the upper right side of this blog I stole from a silver paperweight I bought in a museum gift shop. The paperweight has this Michaal Jordan quote on it.

That should tell you something right there about the validity of the quote when you know a champion athlete with great success in life is the person quoted.

“Don’t Be Afraid to Fail. Be Afraid Not to Try.”

At HealthCentral when I was the Health Guide there for close to nine years the editorial team wrote a news article that must have stole something I wrote elsewhere on that website.

The editorial team had the boldness to write in the news article that: “The only real failure is the failure to try.”

And they understood that for those of us with an MH challenge sometimes trying can be as simple as getting out of bed or taking a shower.

My take on this is that as long as we try our best there can be no shame in failing. Giving our goals our best shot counts more than whether we actually achieve what we set out to do. I bombed out big time in my first career in the gray flannel insurance field.

Failure is simply the cost of doing business in the real world.

Experiencing failure is necessary to grow as a person.

When you’ve lost your mind there is nothing else you could ever fear losing.

Thus people with MH challenges have nothing left to lose and everything to gain by risking achieving goals.

 

We need to fail to learn what not to do.

We need to fail to experience all that life has to offer.

We need to fail in order to succeed later.

Like Michael Jordan I too was always afraid not to try.

The alternative–not risking getting a job–was no option.

I didn’t want to be doomed to collecting SSI forever and living in a dangerous crack-drug-infested apartment complex on the edge of town the rest of my life.

In recovery as in life there are no guarantees.

Yet if we don’t take these kinds of speculative risks that involve the possibility of failure (the possibility of gain or no gain):

There’s only one guaranteed outcome:

No chance of potential success either.

My motivation for taking the risk to get a full-time job in 1990 was simple:

I sure didn’t like living in an apartment where my friend and I joked that we had cockroach races to see which bug got to the other side of the living room first : )

I’ll talk more in coming blog entries about taking healthy risks.