Rebelling the Role of “Mental Patient”

It can seem like there’s a glass wall separating people with mental health conditions from others.

It’s like you can see what’s on the other side–“success” “a good life” “a career” “a home”–and the wall stands between you and getting these things.

What is this invisible barrier? Internalized self-stigma brought on by harboring outdated false beliefs about what a person’s life is destined to become after a psychiatric emergency.

Getting to this side involves breaking free of the shackles of guilt and shame.

What I’ve learned I’ll gladly share here. I want to quote from the Introduction to my career handbook so that you might be convinced of the truth: You Are Not Your Diagnosis:

As a young person, I was happy even though my life was less than ideal. Yes—I chose to be happy even when the circumstances of my life were dismal. You can like I did rebel the role of “mental patient.” You are not your diagnosis. You’re a human being with wants, needs, desires, goals, and dreams just like everyone living on earth. It’s a mistake to think your diagnosis limits you forever in what you can do.

Having a diagnosis is often part of the package you present to others yet it isn’t your identity. Defining yourself by your symptoms locks you into a no-win mental straitjacket. Your diagnosis is not a dead end and it doesn’t define you.

A women’s organization I’m a member of used to ask its members: Who are you?

I say: you have the right to choose your identity.

In a coming blog entry I’ll talk about this in more detail.

 

6,666 Page Views – Merci

The devil’s in the details as the expression goes:

Today I see I have reached 6,666 page views for the Flourish blog.

Thanks a million to everyone who stops by to read what I have to write.

In an era when the New York Times and other traditional news outlets and media fail to give innovative journalists a platform:

It’s great to see that in the blog world every one of us has the chance to make a difference.

The blogs and books are my platform for advancing my vision.

What is that vision you might ask?

The right to have a full and robust life living in recovery from whatever it is you’re in recovery from.

I’m not spooked that 6,666 has shown up as the number of page views.

It convinces me that there’s a market for my mission of spreading hope and healing in the world.

In a society where there’s a lot that’s not right:

It’s up to us bloggers to be part of the solution.

Having 5 Commitments

Easily over five years ago I read a Leo Babauta book where he told readers to list their 5 Commitments in life.

This approach made great sense to me. In the spirit of talking about recovery I want to riff on choosing and committing to 5 areas.

Do this for the sake of your mental health and physical well-being first of all.

As I head into my fifties and go through changes at mid-life the benefit of having 5 Commitments resonates with me more than ever.

It’s called a routine: adopting healthy habits that you engage in every day or every week.

This isn’t to say that the focus of your life won’t ever change. As you get older, you’ll need to improvise as you go along.

I find myself at 53 engaging in a form of woodshedding, which I talked about in one of the first blog entries in this Flourish blog.

While isolating inside because you’re afraid to go out your front door isn’t healthy I say:

Enjoying your own company when you’re alone in your apartment or house is imperative.

As I’ve started journeying through mid-life I can vouch for the positive health benefit of needing more time for yourself to rest and engage in recreation.

You need to rest after going out socially or having a long, hard day at your job.

The key to maximum productivity in your personal life lies in the beauty of honoring your 5 Commitments.

My 5 Commitments are art, music, fashion, books and writing, and exercise.

Making time each week to do something involving these 5 things I love has been the way to feel healthy and be happy at mid-life.

What are your 5 Commitments?

In coming blog entries I will continue with the focus on careers.

Yet I will apply this wisdom to everyday life.

Living in recovery doesn’t have to be so hard. Even if you’re in pain that’s when doing the things you love can help you feel better.

That’s it exactly: focusing on the 5 Commitments that bring you joy.

 

Making Changes for the Better

Leo Babauta on his Zen Habits website invokes readers to see:

“The uncertainty and discomfort are a necessary component for us to do anything meaningful.”

Making changes–even when they’re for the better–isn’t always easy. It can be downright hard to try doing something new that has the potential to transform your life and elevate your confidence.

I say: Just Do It. The more you take action the easier it will get to keep taking action.

“A body in motion stays in motion” is the old cliche.

There’s a great lyric in a Vampire Weekend song that is so generic I dare repeat it here because it’s not the exact lyric.

The idea is that a person doesn’t want to live the way they’re living yet they don’t want to die either.

It can be scary to change in any kind of way. Yet I urge you to consider that there’s a way out of the pain by going through it and figuring out what the pain has to teach you.

You can use your pain as the catalyst to figure out your life’s purpose.

My contention is that I was able to heal in part because I placed Service Above Self.

After you have a setback and you’re in recovery from whatever happened you have the choice: to roll over and passively accept a life of pain. Or to do what it takes to heal and be well.

For some of us it will take longer to get to where we want to be. Recovery is not a race nor is it a competition.

Yet the point is you can change for the better at any point along the road of recovery.

To change the world you first have to change yourself–as Michael Jackson so beautifully sang in his song “Man in the Mirror.”

In a coming blog entry I’m going to talk about something Leo Babauta wrote in one of his books years ago.

His theory of focusing on your 5 Commitments I want to apply to recovery.

As hard as it can be living in recovery there’s always hope that you can change your life for the better.

I maintain that focusing on your 5 Commitments in life can be a way to heal and be well.

Who You Are Versus the Pills You Pop

I’ve been thinking long and hard about the topic of personality.

About how a person’s soul is animated in their body and embedded in their brain in this particular lifetime.

We cannot confuse a person’s symptoms and illness with their identity and individuality.

That is the root of what’s called “stigma”–stereotyping everyone with a mental illness based on one person’s behavior.

In fact, stigma isn’t often linked to observed actual behavior. Just to popular opinion of what it’s like to have an illness. Which is fueled by the media.

I’ve been an Activist–a Mental Health Advocate first of all–for over 17 years so far.

My stance is this: anyone who chooses not to see another person as an individual is blind.

I’ll quote from an e-mail I received:

“Those who judge don’t matter and those who matter don’t judge.”

I say: “Break bread” with others to get to know them at their soul level.

The sad fact is for too many people those of us with a mental health diagnosis are seen as an interchangeable homogeneous entity.

It’s why I refuse to divide people–either along color lines or the line of having a mental illness or not having one.

In the end, it’s simply lazy and ignorant to stereotype a person, as if they are not worth getting to know for who they are on the inside.

The truth is: our personalities are as individual as our thumbprints.

Which is the root of why I wanted to write and publish a memoir that told a good story about real people living lives apart from their illnesses.

There’s no other first-person narrative like my book Left of the Dial.

As said I’ve been thinking long and hard about how the individuality of a person diverges from their symptoms.

Who You Are Is Not the Pills You Pop.

Add the chemical cocktails we imbibe to the mix and this doesn’t alter our personality.

I want to shake the haters and ask:

“What’s up? Can’t you see that everyone is beautiful? Why are you labeling people you haven’t even met?

Why are you closed off to opening your eyes to the diversity of human beings at the soul level?”

I tell you:

Imitation isn’t the sincerest form of flattery. It’s the quickest route to ill health.

Be brave. Be yourself.

That’s the foolproof  recipe for success in recovery.

 

26 Years in Remission

I’ve decided I want to act as a storyteller to tell stories from my own life. I’d also like to have other people tell their stories in this blog.

As always, I don’t have a license to practice medicine–I’m not an M.D.

So I can’t give medical advice. I can’t tell people to take medication. Nor can I give instructions on how to discontinue medication.

My goal in telling my story is to uplift and inspire others that there’s hope for healing and having your own version of a full and robust life.

Ann Bartlett at HealthCentral years ago told it like it is:

“Healing is as potent a medicine as a cure can be.”

The reality is critics have attacked me for writing about how taking medication helped me heal.

There’s a whole contingent of anti-psychiatry folk who champion that people have the right to be psychotic. Underneath their contempt of what I write there’s most likely a grain of envy.

They don’t like that I’ve done great things in my life precisely because I take medication. This disproves their claim that medication causes disability.

If I went away, if I watered down my vision to please these people, if I sold my vision to the highest bidder (Pfizer et al), nothing would change in society.

Peers who need to hear my message of hope and healing would be left in the dark. Families would think there’s no hope for there loved ones.

This is my story:

I’ve been in remission from schizophrenia–with zero symptoms–for 26 years as of this month.

This has been possible because I take a dose of maintenance medication.

The details about my recovery are out in the open in my memoir Left of the Dial.

What’s different about my story is that when I was only 22 and first diagnosed I dared think a better life was possible than the one presented to me: living in public housing and collecting a government disability check forever.

I’ve written in here before a blog entry that if I remember right was titled the Myth of Competitive Employment.

One anti-psychiatry critic denounced my success as impossible for most people to achieve.

If that were so, why would I dangle in front of peers a goal that can’t be reached?

Those of us who are doing well–most of us who are doing well–don’t have the courage like I do to talk about this publicly. So it can seem like no one’s able to recover.

The point–as expressed in The Myth of Competitive Employment–is that each person’s definition of recovery is going to be different.

Each of us can find our own version of well inside the illness. My version of well is simply my story. Your version of well is your story.

I really wish more people would come forward to tell their stories.

I wanted to publish Left of the Dial to show how getting the right treatment right away can create a better outcome.

I’ve been in remission 26 years as as of this month.

In the coming blog entry I’ll talk about the book in more detail.

Giving Stigma the Boot

This discovery just in:

I figured out why most people don’t understand you.

Their lack of compassion comes from a place of hurt.

Think long and hard about their envy, their critical nature, their attacks.

Doing so you’ll most likely find they feel threatened.

You’re able to have or do something they can’t have or do.

Be empathetic; be ethical in how you interact with these and other people.

Yet remember: you are a person of worth equal to others in society.

You are worthy, regardless of whether you’re in remission or not.

You are a human being and are entitled to be treated with dignity.

Are you struggling? When will this end you might think.

It’s foolish to assume that other people have it easy. You don’t know what’s going on behind their closed door or in their head.

I say: try to have compassion for people who don’t seem to have compassion for you.

One day they could be tested by getting ill. Then suddenly they’ll be clamoring for a way out of pain and for others to understand.

I’ve said it before in my blogs and I’ll say it again: the role of stigma in impeding what a person can do is overrated.

I’ve thought long and hard about how to bounce back from rejection. About how to feel good about yourself when it seems other people don’t understand what you’re going through.

Meet me in the next blog entry for info on how to soldier on in the face of the heavy artillery of other people’s hurtful comments.

They just don’t understand. Get it? I no longer expect outsiders to understand what it’s like. We can’t expect the impossible from other people.

We can only expect ourselves to do the best we can with what we’re given.

I choose to make a lemon meringue pie out of the lemons life throws.

Talking About Grief and Mourning

Once again I’m the first and only person writing about a topic no other mental health writer or agency has tackled before: what it’s like in bereavement for a person diagnosed with bipolar, schizophrenia, or another emotional illness.

My father has been gone over two years. An aunt died over a year ago. After my father died I started to have conversations with him. He appeared to me in dreams.

The older you get there will be different kinds of losses–of  the people you love, of friends that no longer suit you, of dreams that go unfulfilled.

As the years roll by, our accreted sorrows can engulf us even though we’re doing well and able to function. Our grief as we get older can become unbearable not just in mourning our loved ones. Our pain over not getting what we wanted in life can also consume us.

I haven’t yet had a boyfriend come into my life or a book contract for my second book.

One, just know that you are not alone.

There’s hope that you can get what you want even though it might take longer or you might have to go about it differently in your method for achieving something. It took me 13 years from start to end to publish Left of the Dial.

Two, just understand that you shouldn’t take other people’s bull crap.

They have no idea–most likely they have no compassion because they’re in this world for self-gain so don’t value kindness.

Only I understand what it’s like to have a mental illness. I identify as a person diagnosed with schizophrenia.

I’m 53, and I’ve had to survive by my wits and grit all these years in recovery. I decided long ago that I wanted to act as a cheerleader for others with mental illnesses to give them the hope, support, and encouragement that has been often lacking.

With the “everyone can recover” mentality what gets lost in the message is that even though you’re in recovery your life can still be hard.

A therapist once told me: “Your pain can be greater because you’re aware that you’re different.”

So-called normal people just don’t get it about what it’s like to live with a mental illness. They can’t possibly truly understand.

You’re left to yourself to make your way in the world. No one asks you how you’re doing. No one calls you on the telephone to brighten your day.

To add to this the feeling of grief you have over a loss can threaten to overwhelm you, to consume your waking thoughts, to settle on your chest like a weight, to make you lose hope.

Grief and its twin rejection can seem like immutable forces that will keep us on the sidelines of life.

My analogy is that there’s not a glass ceiling for us, there’s a glass wall separating us from others. We can see the outside world and want to be a part of it yet there’s a glass wall separating us from that world.

There’s a counter-intuitive solution to combat sliding into permanent despair. I can’t take credit for this strategy. It was my own mother who told me:

“Love life. That’s the only one you have. You have to live your life.”

Then my mother said:

“It’s about getting up every day and getting your job done.”

Each of us is doing the best we can with what we were given.

One some days our job will be simply to get out of bed. On other days our job might be to go to a coffeehouse and buy a hot chocolate.

I”ll end here with this:

I understand what it’s like to be in mourning. I understand what it’s like to have ongoing setbacks.

 

 

Self-Care 101

Like I wrote in here recently you have to expect that setbacks will happen. It’s not a matter of if but when you’ll experience a setback.

As this is true it’s imperative to adapt to the changes happening in your life. You need to be flexible and open to doing things differently.

Be flexible  while you’re experiencing the setback and in an ongoing way after the setback ends.

The point is if you ask me to change as you go along in your life.

Your needs will change as you get older.

It’s also critical to remember to be kind to yourself when you’re not at full speed and are unable to do what you were ordinarily able to do.

Be kind to yourself. As long as you’re doing the best you can there’s nothing to be upset about if you’re experiencing your own kind of retrograde period.

This setback time is perfect for editing and revising, taking stock of where you’ve been, thinking about where you want to go in the coming weeks and months.

We are all human. You and I might always mourn the passing of our “glory days” like the baseball pitcher in the Bruce Springsteen song “Glory Days.”

I’m here to tell you to have no fear: the best is always yet to be.

It’s possible to emerge on the other side of the setback stronger and more confident.

None of us can predict the specifics of our future lives.

Yet by taking consistent action to move forward in the direction of our goals we can bloom.

Yes: the best is yet to be. I firmly believe this.

Refrain from agonizing over what you’ve lost or haven’t been able to do.

As long as you wake up and God gave you another day it’s possible to make positive gains.

I’ll report in the next blog entry about setting up a home gym.

We’re All Winners

Unlike the disability rights crowd I’m content to use the word “courageous” to describe what it’s like waking up every day and having to live with an illness whether chronic or in remission.

As a fifty-three-year old woman, I don’t think anything or anyone is normal in this world. One day I simply couldn’t get out of bed again. So I stayed home.

Yes, I tell you: give me some kind of prize for having had a breakdown. Call me courageous even though I recovered and I’m in remission. No one should have to deal with an illness every day of their lives regardless of whether or not they still have symptoms.

First of all, folks, it’s courageous to practice wellness in a climate where others want the right to choose to be ill. Only the ill times were no joke for me.

My belief is that you can find your kind of wellness within your illness even if your condition is more severe.

I’m not going to minimize or discount the pain people are in. Nor do I want others to gloss over the pain I’m in. Though I report from the land of Well and Plenty I didn’t always have this fertile tilled soil. It’s too darn hard to get where I’ve gotten that you bet I expect others to have compassion for all of us.

We cannot live our lives in mortal fear of emotionally clueless people who have no compassion for us and our trials. That’s why I say: give us some kind of Nobel Prize just for waking up and being able to go out the door in the morning.

Whether we’re still in pain or doing better isn’t the point. The exclamation point is that each day we’re trying our best to survive and thrive.

We’re winners just because we get up in the morning.