Tag: family support

Mother’s Day Message

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This is a Mother’s Day greeting to every women reading this blog entry. It’s thought that all women are mothers in some way taking care of other people.

My mother turned 80 this year. I’m 53 now. In 1987 when I was 22 I was diagnosed with schizophrenia. My mother had driven me to the hospital within 24 hours of my breakdown.

This greeting goes out to every mother whose adult children and or the mental health staff have blamed them for what happened to their kids.

Ever since I decided to become a mental health Advocate in 2002 – over 15 years so far – I’ve credited my mother’s one courageous act to drive me to the hospital as the number-one reason I recovered. Recovered with an ed at the end of recover because of my mother.

I will go to my grave championing getting the right treatment right away when a person first experiences mental or emotional distress.

My mother isn’t well. For 40 years she smoked two packs a day. Though she quit when she was 61 it was too late to prevent smoking-related disability. She has emphysema because of her addiction. Today she sleeps and travels everywhere with an oxygen tank.

Though I’m the one diagnosed with schizophrenia I’ve become my mother’s caregiver. Unlike how a lot of mothers are the caregivers for their adult kids with schizophrenia.

No one at mental health organizations like NAMI talk about this reverse dynamic: how adult children are becoming caregivers for their parents. Hell NAMI isn’t even addressing the mental health needs of senior citizens living with mental health issues.

What will happen after our parents are gone and we have no one to care for us?

I’m fortunate that I’ve recovered and have always been independent. I will continue to be fit and active because of my own efforts.

Yet what will happen to people diagnosed with schizophrenia who can’t care for themselves after their parents are gone?

What will happen to our parents if we can’t care for them when we’re older?

Nobody’s talking about this. Not NAMI. Not anyone else.

Over five years ago I first wrote about geriatric psychiatry when I was the Health Guide at the HealthCentral schizophrenia website.

Back then I was a pioneer in writing about this. Today I’m still a lone wolf crying out about senior citizens with mental health issues.

We need to think about the passing of this health baton. We need to get real and start talking about the services and supports available to people with schizophrenia and other illnesses that are becoming senior citizens.

We need to talk about the reality that soon those of us who are caregivers will need someone to take care of us.

I’ll end here by sending every women reading this blog entry words of compassion, appreciation, and gratefulness for all you do.

Street Drug Use Information

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I want to write about pressing topics now and in future blog entries along with my standard inspirational fare.

My goal is to inform readers with solid information.

Hardly anyone else in society cares about those of us with mental health issues who have chronic conditions.

My aim is not to only focus on people who are capable of recovering fully. My goal is to also advocate for those of us who have it much harder in recovery.

I ask you: who really cares about any of us who have a diagnosis? I do care.

Years ago I read the David Scheff book Clean–an expose of the drug rehab treatment center industry.

The fact is drug rehab centers have bigger revolving doors than psych hospitals.

Drug rehab treatment centers aren’t licensed or regulated. Anyone who wants to can open a drug rehab center and collect money.

Are people revolving in and out of drug rehab centers because they’re too ill to stay clean?

More likely I think the drug rehab treatment center industry fails in helping the very people who need help.

On a New York City cable news channel there are commercials for a drug rehab treatment center. The actors who portray clients are always beautiful, photogenic people who are getting massages as part of their drug treatment.

This alarms me.

A New York Times article this month stated:

“A Surgeon General’s report in 2016 said that the younger people are when they start taking drugs, the more likely they are to become addicted long-term.”

In fact most street drug users don’t have fatal overdoses–they spend their whole lives battling an addiction with varying levels of success. They might have numerous overdoses over time.

Methadone and Buprenorphine can be effective treatment aids for combating heroin use. Yet for some reason they aren’t widely used even though they do help a lot of people.

John C. Norcross, the author of Changeology: 5 Steps to Realizing Your Goals and Resolutions, stated in his book that plenty of people can and do overcome bad habits like drinking, drug use, overeating, and overspending by using the scientifically-proven 5-Step method for making changes by executing the 5 steps in the right order.

The Changeology method can be used at the same time as formal treatment.

There’s a book: Beyond Addiction: How Science and Kindness Can Help People Change. It’s a guide for families to use motivational interviewing to help their loves ones stay clean.

In the book Clean David Scheff reports that upwards of 50 percent of the individuals diagnosed with bipolar have a co-occurring street drug addiction.

The biology of certain people can guarantee they’ll get addicted to street drugs as soon as they first start using them. This is what happened to David Scheff’s son.

If you’re curious about using street drugs I want to end this blog entry with one statement: it’s just too risky to try it especially when you have a mental health issue.

Again: I care about everyone living in recovery. Too many so-called normal people in society don’t care about mental health peers. They parrot over and over that no one can recover without trying to help people recover.

Only one thing is true: if you have a street drug use disorder it will be harder to recover from a mental health issue.

Please. It’s just too risky.

Peaks and Valleys Go Hand in Hand

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I’m the family member of a loved one who has it much harder as well as a peer with lived experience.

I understand that the expression “roller coaster ride” perfectly describes your life coping with the ups-and-downs of your loved one’s recovery.

It IS a roller coaster.

You know there’s no “rock bottom” because it seems like an abyss–a bottomless pit–into which your loved one is falling ever-deeper down.

When will it end?

When will you or your loved one be able to get on the right track in recovery?

It can be heartbreaking standing at the top and seeing your loved one doing well, only to have them crash and have a setback two weeks later.

Yet I figured out the solution: to plan for and expect setbacks.

I subscribe to the newsletter that a boutique gym owner sends out via e-mail.

In it he said the very same thing: “You can’t have peaks without valleys.”

Setbacks are par for the course.

So if you think a person can “always” be well and “never” fall back once they’ve gotten to the top, you’re setting yourself up for heartbreak.

Planning for and expecting setbacks is the key to improving how you feel.

I know that changing my perception of the nature of the roller coaster has helped me.

What is the one thing that can improve the outcome in a person’s recovery?

Getting the right treatment right away. Getting the right treatment before you or your loved one turns to street drugs.

I got the right treatment within 24 hours. My loved one didn’t get mental health treatment until far far too late.

As a family member as well as a person with lived experience:

I refuse to kow-tow to the anti-psychiatry crowd that is against any kind of mental healthcare that requires medication.

At the HealthCentral SZ website when I was the Health Guide there I wrote news articles about The Positive Psychiatry Movement.

That’s the term I used to describe championing the best and brightest in the field who are working to promote Recovery for Everyone.

In the coming blog entries I will talk about how The Positive Psychiatry Movement is predicated on getting the right treatment right away.

I will talk about the real experiences of people who got early intervention and fully recovered.

To Thine Own Self Be True

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I’d like to expand on the last blog entry.

Recovery is an individual lifestyle for each of us.

Each of us has a divine purpose for being here in this particular lifetime.

You are here to do You better than anyone else could.

I’m here to do Chris because she’s the only person I get to be too.

Really I do think getting the right treatment right away has enabled me to have a better life.

Life isn’t supposed to be easy for anyone of us. Yet nothing worth having comes without effort.

Giving up on ourselves or our loved ones isn’t an option.

The fact is recovery is still possible even if you got delayed treatment. Positive change is possible at any point in your life or your loved one’s life.

What becomes the option if you or your loved one got delayed treatment?

Developing work-arounds to use to have as happy and healthy a life as possible given that you might have it harder.

Settling for less than optimal health is the route to a miserable life.

Sometimes you have to fire a treatment provider–either yours or your loved one’s–and find a better shrink or therapist who’s more competitive in wanting to see their patients do better.

In my memoir Left of the Dial there’s a scene where I have to flee an unprofessional doctor and seek treatment elsewhere.

I don’t advocate being rash in doing this. Yet if your intuition tells you and in your judgment you think you’re not getting the best possible care:

I recommend researching new providers.

Resources to Recover in the NY NJ CT MA area has a provider referral directory.

Family member and peer-reviewed recommendations are available on the Resources to Recover website.

Like I said I will go to my grave championing getting the right treatment right away.

In a coming blog entry I will talk about my experience as a family member of a loved one as well as a peer with her own lived experience.

Acting as Citizen Activists

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In my Left of the Dial blog at least twice in the last three years and possibly also here in the Flourish blog:

I’ve railed against placing our hope in the government as the savior of the broken-down mental health system.

What I wrote in these exact words: the government can’t rectify societal ills. I wrote these exact words too: change will best happen person-to-person.

As the Visionary I am two nights ago I got a novel idea in my head to create CMHAC’s–Citizen Mental Health Action Committees.

These groups could act as watchdogs to pressure those in power to do the right thing.

People have to band together to have each other’s backs in America when the government, authorities and institutions, and elected officials won’t and can’t help ordinary folk.

We need United Citizens to fight the Citizens United decision that allows corporations to influence campaigns and help vote into power officials that remain in the pockets of Big Business not in the corner of you and me.

Let’s face facts:

It took three years to get Representative Murphy’s Mental Health Act passed into law.

It took decades for Americans to obtain some semblance of a Mental Healthcare Parity law.

How long will we have to wait before our government is forced to do the next right thing for the people?

The jails-as-mental-hospitals phenomenon has been going on for over a decade now.

I’m tiring of hearing about the lack of treatment. I’m tiring of hearing people talk about how jails-are-mental-hospitals without being able to implement a solution.

This weekend I reached out to give information about resources. I wasn’t going to bobble along and do nothing.

The Margaret Mead quote gets it right:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”

Acting as Citizen Activists is the goal whose time has come.

It’s time to take action.

We need the best and brightest to come on board as mental health staff.

For too long mediocre individuals have been treating us peers.

For too long the government has allowed all kinds of businesses to be unregulated.

Board-and-care homes are unregulated. The drug treatment rehab center industry is unregulated.

The lack of the right treatment  is the norm not the exception.

I’m mad as hell, and I’m not going to take this anymore.

Which is why I had the courage to step up and want to help do something.

I align only with the Green Party.

This year I plan to get involved with Green Party candidates that I know to work on issues like mental health and decriminalizing street drug use.

Remember: we get who we vote for.

“I’m done” with standing by and not doing anything.

Introduction to Educational Conference

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I’m set to give a talk on employment at the NAMI-New York State educational conference on Saturday, November 12 from 5:40 to 6:40 p.m.

My talk will focus on my new peer-owned resume writing and career help service. It will also detail my own experience with requesting a reasonable accommodation on the job.

Here now I want to give a plug for my memoir Left of the Dial. The book chronicles how I recovered with the help of family support, a great psychiatrist, and also peer support in the later years.

What’s remarkable is that in all my life and early in my recovery I was able to see possibility where others saw pain. Even today I see potential where staff still tend to see disability.

In 1990 I blazed a trail for myself at a time when no road out had existed for a person like me. Years later I had the vision to use my writing to uplift and inspire others that an open road now exists for them too.

In the 1980s and early 1990s when I was young and in love with Manhattan I refused to be placed in any kind of box–not a sartorial one; not a psychiatric one.

Dressing in Avant Garde fashion and listening to alternative music was my way to jump out of the boxes others tried to place me in.

Quite simply I didn’t want the label schizophrenic attached to me either.

In time I understood that the diagnosis is best used as a tool to help someone get the right treatment for the symptoms they’re experiencing right now.

My memoir Left of the Dial is a treat because it follows along in the lives of real people living real lives outside of the hospital, outside of any kind of institution. The characters in my book have unique identities apart from their symptoms.

My goal was always to write about what happened after I recovered. If another woman could write about her chronic symptoms and endless hospitalizations, I thought, why can’t I write about a success story to give others hope?

I don’t know about you however in my 29 years in recovery I’ve read and witnessed numerous hell-and-heartache stories.

When I pick up a memoir I don’t want to read about yet another train wreck. I want to be inspired that it’s possible to overcome whatever challenge the character faced.

Don’t we all want to be given hope that if a character in a book can conquer an obstacle that we can too?

Bingo. That’s what it’s all about.

We need to set the clock to today when it comes to thinking about recovery. As of today a significant number of people–more than ever–can and do recover and some of us can be in remission for the long-term too.

We cannot dwell in the psychiatric failings and abuses of the past.

I’ve talked in here endlessly about the Helping Families in Mental Health Crisis Act. This year the U.S. Congress passed this bill into law. We’re awaiting the U.S. Senate to pass their version.

Now more than ever with landmark legislation like this–and with better treatment, support, and lifestyle options for peers–we cannot regress to continually parroting that no one can recover.

Yet we cannot forget or ignore or abandon our peers who have a chronic form of their illness.

Only now with the possible assistance of the U.S. government in passing laws to promote access to better treatment it’s possible that fewer people will be getting worse and worse without help.

Getting the right treatment right away equals the possibility of a better outcome.

Starting next week I will blog in here about the topics I’m going to talk about at the educational conference. Stay tuned.

 

Getting Real Help

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I had a job as the Health Guide for HealthCentral’s schizophrenia website for nine years.

What I wrote for HealthCentral was in the vanguard of mental health reporting. What I wrote was always five years ahead of what other people and organizations were writing about recovery.

Years ago at HealthCentral I would write a series called Family Members Forum. In one of those news article I gave ideas as to how to help a loved one.

Point blank I wrote this: “Ask your loved one: “What do you need me to do right now to help you?”

In this way everyone in society needs to “get with the program” as the expression goes in how they interact with people living with and impacted by a mental illness.

I always wanted people to see me not my pain. Jodi Picoult is quoted: “People are more than the sum total of their disability.”

The producer Mark. R. Weber understands that maybe we can’t end homelessness and we can’t always give a homeless person money. Yet we can stop for a moment to talk to them to ask their name and show we care about them as a human being.

In this way too people need to start breaking bread with those of us who have some kind of mental health challenge. It’s a Catch-22 because a lot of us don’t go around telling people “Hi, I’m so-and-so and I was diagnosed with ______________.”

So a lot of times no one else knows what we’re going through unless we tell them.

What is the solution? Brene Brown wrote about this in her classic book Daring Greatly. We should tell only the people who have earned our trust.

I understand what it’s like to not trust mental health providers.

I had to quite seeing a doctor immediately because of his unprofessional behavior. This is revealed in a humorous scene in my memoir. I fled his office one night and didn’t ever return.

This lack of trust has extended to mental health service providers like state employment agencies for individuals with disabilities.

For at least five years now I’ve realized there was a need in the marketplace for my second book–a one-of-its-kind self-help book.

In September I will start to talk about this book and about a new business I hope to provide to peers linked to this pressing need that has historically gone unfilled.

I ask you: when has any other person asked you: “What would YOU like to do with your life and how can I help you do that?” Instead of telling us: “This is what you should do and there’s no other option only the one I deem appropriate.”

VESID in New York City would send people who were deaf to a printmaking program long after jobs in that field became obsolete. Peers were disillusioned with this state employment services agency for years.

There’s a better way. In this regard I want to start my own peer-owned business to fill this need that has gone unmet. Stay tuned in September for more news about this.

 

Non-Traditional Work

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I have famously celebrated Rite Aid cashiers in this blog and elsewhere.

An old SZ magazine news article of years ago talked about what to do if you have negative symptoms or other limitations that make paid employment not viable.

The analogy was that if you like to play guitar you could join a band. If you like to write you can try to get published in literary journals. And so on. And so on.

I have often made the case that only valuing work that contributes to the economic stream in society effectively undervalues people whose humanitarian work–and often the work of recovery–DOES COUNT as a worthy endeavor.

One of my saddest things is that parents with adult kids who are diagnosed with schizophrenia often have to mourn the loss of the son or daughter who isn’t going to be the M.D. or J.D. they hoped.

My contention is: it’s not our parents’ choice that should determine what we do in life.

I’ve been told of a woman who bakes cakes. I’d be willing to take the risk to pay her $100 to bake me cakes to take to a holiday party. Her father is disappointed that all she does is bake cakes. The identities in this story have been changed yet you get the idea.

I don’t value paid employment because I’ve worked with rude or lazy co-workers so I can assure you a robot could do their job better. It’s unfair yet they remain employed. I don’t hold these people up as role models. Ordinary people diagnosed with schizophrenia who get up every day and struggle to get out of bed are my true heroes.

I value the gifts people were given at birth to use to better ourselves and others in the world. Using the gifts we were given and not squandering them is indeed the foolproof way to have a full and robust life–regardless of whether you’re paid to do the work you do.

This is where I’m going to end this series of career blog entries. It seems I’ve detailed this as specifically as I can right now.

Stay tuned for topics in April related to finding joy in living in recovery at mid life.

Family Support

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I always told audience members at book talks that I recovered because of my mother. She drove me to the hospital within 24 hours and I was placed on medication and three weeks later when I got out I had no symptoms.

All along my mother brushed this off and didn’t think I should give her the credit. Was she insinuating that my own actions rightly took the starring role in why I was able to have a full and robust life?

I’m grateful either way. Yet I’d still rather deflect from perpetuating the myth that I’m some kind of superstar.

As I’ve written before, each of has gifts we were born with that can help us recover and do well. It’s my contention that we should move beyond using these gifts solely for self-gain and use them to promote wellness for others.

I say: let’s give a shout out to our families who often are doing the best they can faced with the truth that their kids have a mental illness.

My memoir Left of the Dial is the only one that details the link between family support and how a person can succeed. The book shows how an illness threatens to ravage the character’s mind and how her mother will do anything to stop the illness from taking over her daughter.

The expression by any means necessary popped into my head about the measures family members often have to take to get their loved ones help. Our families often do battle with the gatekeepers in the mental health system who refuse to admit us to the hospital, who refuse to give us medication as soon as we need it, or who surprisingly reinforce that there’s no hope for what loved ones can do.

Forget Taking Back Sunday like the name of the rock group. We need to talk about Taking Back Power over the trajectory of our recovery.

I say: give family members their due.

I’m confident when I write that only a mother who has given birth to her kids can possibly understand the distress that comes from seeing your son or daughter slip away before your eyes because treatment is denied or delayed.

As a daughter, I can only imagine that fear and desperation.

I will talk about family support in the future again.

Now: go tell your mother and father that you love them.

Reaching Out

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The difference between getting to recovery and not doing well is often living with your symptoms for too long before reaching out for help.  It seems astounding that a person wouldn’t realize on his own that something is remiss in what’s going on.

Miraculously, I knew something was wrong and I reached out to my parents.  My mother drove me to the hospital within 24 hours and I got the right medication a day later and three weeks later the symptoms had stopped.

A family member or a trusted friend can be your biggest ally on your treatment team.

Going it alone isn’t easy and you don’t have to go it alone in your recovery.

My memoir, Left of the Dial, is in effect an ode to my mother.  I hope to publish it in September.

I’ll talk next about how to designate someone to talk with your treatment providers.